Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Monday, March 19, 2018

Am I Easy To Love?



We all know that being in a relationship is hard work. Both parties have to put in the work, to make it work. Not only are you learning to love someone else, but you’re also learning to love the baggage that come with them. In my case, my baggage is lupus. With lupus comes depression, insecurities, fatigue, doubtfulness, a sense of loneliness, and feeling like you’re unable to be loved. (That’s a lot to deal with right?)

So, my question to my husband is… With all this baggage I have.... Am I Easy to Love?

One thing that is the most difficult when you’re chronically ill and married is still having to cater to someone else besides yourself ALL WHILE dealing with the negative impact of your chronic illness. You have to fulfill your partner’s needs (both physically and mentally), be able to take care of your home & children, making sure that you are available to them when they need you to be. (And don’t add the extra responsibilities such as school, work, etc. on top of that)  All of this…. It’s very difficult to maintain it all because every day I’m already busy trying to fight for my life.

Sometimes, I feel like I’d be better off by myself, not subject my husband to the stuff that I go through. Because it’s a lot. It takes a toll out on me and him, and it just seems like my illness holds us both back from so much. We are both still young, I feel like newlyweds are supposed to be traveling, experiencing new things, taking random dates to exotic places, going on double dates with friends, planning a family, etc.  NOT always in a hospital room, or doctor’s office being worried that my test results are going to come back good or bad… NO WAY! That’s not newlywed life!!!! Our lives are not normal.

Every day it’s something, and each day we struggle through it and sadly, in the midst of all of this, the relationship takes some trying times because eventually, something has got to give. Someone is going to become mentally or physically tired. It’s draining. To always deal with the fact that tomorrow,  I may be unable to fulfill my partner’s needs. That tomorrow, I may not be able to go to work and earn the income we need. That tomorrow I may not even want him to touch me because I may be flaring up. That tomorrow, I may not be the Sharnae he married and fell in love with.

Every human being wants love (you’ll be lying if you say you didn’t) and I have that with my husband, I really love him. But am I easy to love back? I just don’t know.

Monday, July 7, 2014

Love and Lupus

I admire any man or woman that's willing to be in a relationship with someone that has lupus. Not only are us lupies in and out of doctors appointments and hospitals, but we take medicines that makes us an emotional wreck and in some cases interfere with our physical appearance that can conflict with our confidence.

Not many people are built to be that support system that we need and love us regardless of what we may feel like, or look like, and I can't judge them or blame them. Some days we don't want to go out on dates, we'd rather stay home.... Some days we don't want to talk, we just want to lay in bed.. Some days we don't want to move, we just want you to sit with us. It's different being in a relationship with a lupus patient because we need stability in our relationships that consist of a caring and understanding attitude that's willing to put up with our emotional mood swings and the fade of our beauty at times.

A few of the meds that I take have literally made my hair fall out, I've gain weight, and weirdly enough, they cause me to cry at random times throughout the day. (Who would have thought huh?) Another thing lupus patients worry about is having a family with someone that they have fallen in love with. I'm going to be honest, I'm totally freaked out about having children because of lupus. I'm scared that I could become ill and something happens, and I'm scared that I'll be unable to handle the stress of being a mother. Now a days, if you date someone, you're more than likely dating someone that wants to settle down and have a family and build a life together?

I've seen many lupus patients have successful relationships, and go on to get married and have kids (huge kudos to those people loving us lupies) and I've grown to accept what I can and can't do in a relationship, however, I sometimes feel guilty being with someone putting them through what I have to go through! Can any one relate?